Cushings Help

Mary O'Connor  //  Cushing's and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing's Help and Support, web designer, piano teacher and mom.

I am a Cushing's patient who has dealt with Cushing's symptoms and the aftereffects of pituitary surgery since 1983.

Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. The site has grown to astronomical numbers. This disease isn't as rare as doctors have told us!

In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing's symptoms.

I am not planning to have any more rare and unusual diseases.

My entire bio to date can be found here: http://www.cushings-help.com/maryos_story.htm

Feb 23 / 5:17pm

Pituitary Patient Symposium at Swedish Medical Center May 9

(download)

I wanted to let you know about our upcoming patient symposium which will be held in Seattle, WA on Saturday, May 9, 2009.

The second annual pituitary patient symposium title is "A Road Map to the World of Cushing's Syndrome" and will be held at Swedish Medical Center's Cherry Hill campus in Seattle, WA.

We have eight faculty from around the country (1 international) that will be presenting to patients, and will also be speaking at a CME-accredited physician symposium the same day.

Date:   Saturday, May 9, 2009

Location:  Swedish Medical Center, Cherry Hill Campus

          550 17th Avenue

            Seattle, WA 98122

      Time:   9:00 a.m. – 5:00 p.m. 
      Fee:   $50 per person (Breakfast, lunch and snacks provided;  scholarships available) 

      You're invited!

      Please join us for the second annual Seattle Pituitary patient symposium, "A Patient's Road Map to the World of Cushing's Syndrome." Experts from around the world will lead a day-long educational seminar and discussions focusing on Cushing's syndrome.  

      There will also be opportunities for you to share your thoughts and experiences with other patients.  

      Register Online!  
      http://www2.eventsvc.com/swedishhealth?cat=Neurology  
       

      Background Information on Cushing's

      Cushing's syndrome is a hormonal disorder caused by prolonged exposure to high levels of cortisol on the body's tissues. Also known as hypercortisolism, Cushing's syndrome is somewhat rare and most commonly affects adults aged 20 to 50. Cushing's disease is a form of Cushing's syndrome, caused by a hormone-secreting pituitary tumor. About 10 percent of clinically significant pituitary tumors secrete this excess hormone. This elevated hormone level in turn stimulates the adrenal glands to produce excess cortisol. This disease process is called Cushing's disease, named after the famous neurosurgeon, Harvey Cushing. 

      Location/Parking/Directions

      http://www.swedish.org/blank.cfm?id=202 

      For more information: 206-386-2502

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1 comment

Aug 06, 2009
 said...
thank you for posting this.

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