It's Nice She's Getting The Word Out But...

Mary O'Connor // Cushing's and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing's Help and Support, web designer, piano teacher and mom.

I am a Cushing's patient who has dealt with Cushing's symptoms and the aftereffects of pituitary surgery since 1983.

Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. The site has grown to astronomical numbers. This disease isn't as rare as doctors have told us!

In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing's symptoms.

I am not planning to have any more rare and unusual diseases.

My entire bio to date can be found here: http://www.cushings-help.com/maryos_story.htm

It's Nice She's Getting The Word Out But...

...it would be nice if facts were checked first. Both in the description of the video and in captions throughout from the CNBC interview, it says that the subject had "Cushings disease that created a brain tumor" rather than that she had a pituitary tumor that caused her Cushing's.

Oh well. Maybe Ms. Perkins-Rawle will help people learn about Cushing's who were unaware of this debilitating disease. THEN they, and she, can learn which comes first - the tumor or the disease.

Carol Perkins-Rawle on The Big Idea on CNBC part 1

Founder and Owner of Harry Barker talks about her international modeling days, her struggles with Cushings disease that created a brain tumor, which then inspired her to create Harry Barker.

0 comments

It's Nice She's Getting The Word Out But...

0 comments

Leave a comment...