Cushings Help

Mary O'Connor  //  Cushing's and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing's Help and Support, web designer, piano teacher and mom.

I am a Cushing's patient who has dealt with Cushing's symptoms since 1983 (or earlier) and the aftereffects of pituitary surgery since 1987.

Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. The site has grown to astronomical numbers. This disease isn't as rare as doctors have told us!

In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing's symptoms.

I am not planning to have any more rare and unusual diseases.

My entire bio to date can be found here: http://www.cushings-help.com/maryos_story.htm

 
Feb 15 / 10:37am

Brochures for Primary Care Physicians, to increase awareness of Cushing’s syndrome. In English and Spanish

Brochures for Primary Care Physicians, to increase awareness of Cushing's syndrome. In English and Spanish

These were sent to me by a Facebook friend who wrote:

"it's Vida A, I have writen in the facebook group that I would like to upload some information that I think it's very useful. Most of it is in Spanish but maybe someone is able to understand it. I've found it in: www.ciberer.es

then you go to enfermedades raras > divulgación social > boletin social  and then it's in Boletin Social number 3 (dedicated to Cushing)

I think it may be very useful

 

Thanks very much

Núria (Vida A)"

Click here to download:
GUIA_CUSHING_completa.pdf (15.05 MB)
(download)

 

Click here to download:
Brochure_for_Primary_Care_physicians_-_final_version.pdf (462 KB)
(download)

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